abstract：BACKGROUND:Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and faci...

journal_title：BMC palliative care

authors： Guo Q,Cann B,McClement S,Thompson G,Chochinov HM

更新日期：2017-05-06 00:00:00

abstract：BACKGROUND:Little is known about palliative care professionals' attitudes towards guidelines. In 2015, the German Association for Palliative Medicine (DGP) published an evidence based guideline for palliative care in adults with incurable cancer. Before publication we conducted a national survey among members of the DG...

journal_title：BMC palliative care

authors： Kalies H,Schöttmer R,Simon ST,Voltz R,Crispin A,Bausewein C

更新日期：2017-03-21 00:00:00

abstract：BACKGROUND:More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a child...

journal_title：BMC palliative care

authors： McConnell T,Porter S

更新日期：2017-02-13 00:00:00

abstract：BACKGROUND:Over the past decades there has been a significant increase in the number of published clinical trials in palliative care. However, empirical evidence suggests that there are methodological problems in the design and conduct of studies, which raises questions about the validity and generalisability of the re...

journal_title：BMC palliative care

authors： Bouça-Machado R,Rosário M,Alarcão J,Correia-Guedes L,Abreu D,Ferreira JJ

更新日期：2017-01-25 00:00:00

abstract：BACKGROUND:Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey...

journal_title：BMC palliative care

authors： Harrop E,Morgan F,Byrne A,Nelson A

更新日期：2016-11-08 00:00:00

abstract：BACKGROUND:Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine deaths in institutions and the role of individual, regional, and healthcare supply characteristics i...

journal_title：BMC palliative care

authors： Luta X,Panczak R,Maessen M,Egger M,Goodman DC,Zwahlen M,Stuck AE,Clough-Gorr K

更新日期：2016-09-23 00:00:00

abstract：BACKGROUND:Even though struggling with similar symptom burden, patients with chronic heart failure (CHF) receive less palliative care than patients suffering from malignant diseases. Researchers have found that this might be related to lack of knowledge about palliative care, insufficient interprofessional communicatio...

journal_title：BMC palliative care

authors： Ziehm J,Farin E,Seibel K,Becker G,Köberich S

更新日期：2016-08-15 00:00:00

abstract：BACKGROUND:Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care (CBPPC) provides a holistic approach to patient care that can improve t...

journal_title：BMC palliative care

authors： Goldhagen J,Fafard M,Komatz K,Eason T,Livingood WC

更新日期：2016-08-03 00:00:00

abstract：BACKGROUND:Implementation of quality improvements in palliative care (PC) is challenging, and detailed knowledge about factors that may facilitate or hinder implementation is essential for success. One part of the EU-funded IMPACT project (IMplementation of quality indicators in PAlliative Care sTudy) aiming to increas...

journal_title：BMC palliative care

authors： Sommerbakk R,Haugen DF,Tjora A,Kaasa S,Hjermstad MJ

更新日期：2016-07-15 00:00:00

abstract：BACKGROUND:The leading cause of death among young children in southern Africa is complications due to HIV infection and, in South Africa, over a third of all deaths of children younger than five are associated with HIV infection. There is a great and urgent need for children's palliative care in Africa, whether HIV-rel...

journal_title：BMC palliative care

authors： Naicker SN,Richter L,Stein A,Campbell L,Marston J

更新日期：2016-04-09 00:00:00

abstract：BACKGROUND:Empirical knowledge around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of research resources, including expertise and funding. This paper describes a consultation process that sought to develop an agenda for research priorities for...

journal_title：BMC palliative care

authors： Tuffrey-Wijne I,Wicki M,Heslop P,McCarron M,Todd S,Oliver D,de Veer A,Ahlström G,Schäper S,Hynes G,O'Farrell J,Adler J,Riese F,Curfs L

更新日期：2016-03-24 00:00:00

abstract：BACKGROUND:Most patients with life-limiting illnesses are treated and cared for over a long period of time in primary care and guidelines suggest that ACP discussions should be initiated in primary care. However, a practical model to implement ACP in general practice is lacking. Therefore, the objective of this study i...

journal_title：BMC palliative care

authors： De Vleminck A,Houttekier D,Deliens L,Vander Stichele R,Pardon K

更新日期：2016-02-11 00:00:00

abstract：BACKGROUND:Much of what we understand about the design of healthcare systems to support care of the dying comes from our experiences with providing palliative care for dying cancer patients. It is increasingly recognized that in addition to cancer, high quality end of life care should be an integral part of care that i...

journal_title：BMC palliative care

authors： Sawatzky R,Porterfield P,Lee J,Dixon D,Lounsbury K,Pesut B,Roberts D,Tayler C,Voth J,Stajduhar K

更新日期：2016-01-15 00:00:00

abstract：BACKGROUND:Globally, the number of people who die with dementia is increasing. The importance of a palliative approach in the care of people with dementia is recognised and there are national polices to enhance current care. In the UK implementation of these polices is promoted by the National Institute for Health and ...

journal_title：BMC palliative care

authors： Candy B,Elliott M,Moore K,Vickerstaff V,Sampson E,Jones L

更新日期：2015-10-19 00:00:00

abstract：BACKGROUND:Professionals and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This is a specific type of care that may require a different approach to the focus on participation that currently characterizes the care for people with ID. This paper d...

journal_title：BMC palliative care

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2015-07-25 00:00:00

abstract：BACKGROUND:There are many potential benefits to chaplaincy in transforming into a "research-informed" profession. However little is known or has been documented about the roles of chaplains on research teams and as researchers or about the effects of research engagement on chaplains themselves. This report describes th...

journal_title：BMC palliative care

authors： Kestenbaum A,James J,Morgan S,Shields M,Hocker W,Rabow M,Dunn LB

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their informal caregivers as research participants. This study aims to illustrate central issues encountere...

journal_title：BMC palliative care

authors： Stiel S,Heckel M,Bussmann S,Weber M,Ostgathe C

更新日期：2015-05-02 00:00:00

abstract：BACKGROUND:More people die in hospital than in any other setting which is why it is important to study the outcomes of hospital care at end of life. This study analyses what influenced outcomes in a sample of patients who died in hospital in Ireland in 2008/9. The study was undertaken as part of the Irish Hospice Found...

journal_title：BMC palliative care

authors： McKeown K,Haase T,Pratschke J,Twomey S,Donovan H,Engling F

更新日期：2015-04-18 00:00:00

abstract：BACKGROUND:An international discussion about whether or not to legally permit euthanasia and (or) physician assisted suicide (EAS) is ongoing. Unbearable suffering in patients may result in a request for EAS. In the Netherlands EAS is legally permitted, and unbearable suffering is one of the central compulsory criteria...

journal_title：BMC palliative care

authors： Ruijs CD,van der Wal G,Kerkhof AJ,Onwuteaka-Philipsen BD

更新日期：2014-12-23 00:00:00

abstract：BACKGROUND:During the last few decades, patients' rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives for end-of-life patients. These could be relevant tools as early as the initial diagnosis of haematolo...

journal_title：BMC palliative care

authors： Trarieux-Signol S,Moreau S,Gourin MP,Penot A,Edoux de Lafont G,Preux PM,Bordessoule D

更新日期：2014-12-11 00:00:00

abstract：BACKGROUND:The focus of Specialized Palliative Care (SPC) is to improve care for patients with incurable diseases and their families, which includes the opportunity to make their own choice of place of care and ultimately place of death. The Danish Palliative Care Trial (DOMUS) aims to investigate whether an accelerate...

journal_title：BMC palliative care

authors： Nordly M,Benthien KS,Von Der Maase H,Johansen C,Kruse M,Timm H,Vadstrup ES,Kurita GP,von Heymann-Horan AB,Sjøgren P

更新日期：2014-09-09 00:00:00

abstract：BACKGROUND:Hospice palliative care (HPC) is a philosophy of care that aims to relieve suffering and improve the quality of life for clients with life-threatening illnesses or end of life issues. The goals of HPC are not only to ameliorate clients' symptoms but also to reduce unneeded or unwanted medical interventions s...

journal_title：BMC palliative care

authors： Salam-White L,Hirdes JP,Poss JW,Blums J

更新日期：2014-07-11 00:00:00

abstract：BACKGROUND:The Patient Satisfaction Questionnaire (PSQ) is an assessment tool used to evaluate patients' perspectives of their doctor's communication and interpersonal skills. The present pilot study investigated whether the PSQ could be administered successfully in a hospice inpatient setting and if it is an acceptabl...

journal_title：BMC palliative care

authors： Henriksen KM,Heller N,Finucane AM,Oxenham D

更新日期：2014-06-02 00:00:00

abstract：BACKGROUND:To determine the feasibility and acceptability of lower limb neuromuscular electrical stimulation (NMES) as a home-based exercise therapy in patients with cancer who could not attend hospital-based exercise training. METHODS:A single-arm prospective pilot study of NMES, applied daily to both quadriceps musc...

journal_title：BMC palliative care

authors： Windholz T,Swanson T,Vanderbyl BL,Jagoe RT

更新日期：2014-05-01 00:00:00

abstract：BACKGROUND:According to common practice based on a generally agreed interpretation of Icelandic law on the rights of patients, health care professionals cannot discuss prognosis and treatment with a patient's family without that patient's consent. This limitation poses ethical problems, because research has shown that,...

journal_title：BMC palliative care

authors： Skulason B,Hauksdottir A,Ahcic K,Helgason AR

更新日期：2014-03-11 00:00:00

abstract：BACKGROUND:Advanced cancer patients experience considerable symptoms, problems, and needs. Early referral of these patients to specialised palliative care (SPC) could improve their symptoms and problems.The Danish Palliative Care Trial (DanPaCT) investigates whether patients with metastatic cancer, who report palliativ...

journal_title：BMC palliative care

authors： Johnsen AT,Damkier A,Vejlgaard TB,Lindschou J,Sjøgren P,Gluud C,Neergaard MA,Petersen MA,Lundorff LE,Pedersen L,Fayers P,Strömgren AS,Higginson IJ,Groenvold M

更新日期：2013-10-24 00:00:00

abstract：:Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently employed to gather population-based information about the end-of-life care experience among adults in Nova Scoti...

journal_title：BMC palliative care

authors： Lawson B,Van Aarsen K,Burge F

更新日期：2013-08-06 00:00:00

abstract：UNLABELLED: BACKGROUND:The United Kingdom has led the world in the development of children's palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspe...

journal_title：BMC palliative care

authors： Noyes J,Hastings RP,Lewis M,Hain R,Bennett V,Hobson L,Spencer LH

更新日期：2013-02-05 00:00:00

abstract：UNLABELLED: BACKGROUND:Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with paren...

journal_title：BMC palliative care

authors： Kühne F,Krattenmacher T,Bergelt C,Ernst JC,Flechtner HH,Führer D,Herzog W,Klitzing KV,Romer G,Möller B

更新日期：2012-10-30 00:00:00

abstract：: Parkinson's disease (PD) is one of the most common neurodegenerative disorders of the elderly population. Few therapeutic options are available for patients with PD requiring palliative care. Treatment of the early stages of PD is entirely different from later stages. During the later stages, the palliative care mode...

journal_title：BMC palliative care

authors： Lokk J,Delbari A

更新日期：2012-10-25 00:00:00

abstract：UNLABELLED: BACKGROUND:Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and...

journal_title：BMC palliative care

authors： Bentley B,Aoun SM,O'Connor M,Breen LJ,Chochinov HM

更新日期：2012-09-20 00:00:00

abstract：UNLABELLED: BACKGROUND:This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients' preferences for place of care (and death) were facilitated and documented. METHODS:The study adopted an exploratory case study design using qualitative in...

journal_title：BMC palliative care

authors： Almack K,Cox K,Moghaddam N,Pollock K,Seymour J

更新日期：2012-09-17 00:00:00

abstract：BACKGROUND:Under-diagnosis of pain is a serious problem in cancer care. Accurate pain assessment by physicians may form the basis of effective care. The aim of this study is to examine the association between late referral to a Palliative Care Team (PCT) after admission and the under-diagnosis of pain by primary physic...

journal_title：BMC palliative care

authors： Akashi M,Yano E,Aruga E

更新日期：2012-06-07 00:00:00

abstract：BACKGROUND:Previous studies have found that cancer patients undergoing chemotherapy can effectively manage their own symptoms when given tailored advice. This approach, however, may challenge patients with poor performance status and/or emotional distress. Our goal is to test an automated intervention that engages a fr...

journal_title：BMC palliative care

authors： Silveira MJ,Given CW,Cease KB,Sikorskii A,Given B,Northouse LL,Piette JD

更新日期：2011-11-25 00:00:00

abstract：BACKGROUND:Over the past ten years there has been an increasing focus on the need for improving the experience of end of life care. A number of policy initiatives have been introduced to develop approaches to discussing and documenting individual preferences for end of life care, in particular preferred place to die. ...

journal_title：BMC palliative care

authors： Cox K,Moghaddam N,Almack K,Pollock K,Seymour J

更新日期：2011-11-04 00:00:00

abstract：BACKGROUND:While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadventure and hospitalisation. This can be averted through detection and resolution of drug related pro...

journal_title：BMC palliative care

authors： Hussainy SY,Box M,Scholes S

更新日期：2011-10-31 00:00:00

abstract：BACKGROUND:Overuse of anti-cancer therapy is an important quality-of-care issue. An aggressive approach to treatment can have negative effects on quality of life and cost, but its effect on survival is not well-defined. METHODS:Using the Surveillance, Epidemiology, and End Results-Medicare database, we identified 7,87...

journal_title：BMC palliative care

authors： Saito AM,Landrum MB,Neville BA,Ayanian JZ,Earle CC

更新日期：2011-09-21 00:00:00

abstract：BACKGROUND:There is a dearth of data regarding the optimal method of detecting and treating depression in palliative care. This study applied the Delphi method to evaluate expert opinion on choice of screening tool, choice of antidepressant and choice of psychological therapy. The aim was to inform the development of b...

journal_title：BMC palliative care

authors： Rayner L,Price A,Hotopf M,Higginson IJ

更新日期：2011-05-27 00:00:00

abstract：BACKGROUND:Being a family carer to a patient nearing the end of their life is a challenging and confronting experience. Studies show that caregiving can have negative consequences on the health of family carers including fatigue, sleep problems, depression, anxiety and burnout. One of the goals of palliative care is to...

journal_title：BMC palliative care

authors： Hudson PL,Remedios C,Thomas K

更新日期：2010-08-05 00:00:00

abstract：BACKGROUND:Models of palliative care delivery develop within a social, cultural, and political context. This paper describes the 30-year history of the National Tumor Association (ANT), a palliative care organization founded in the Italian province of Bologna, focusing on this model of home care for palliative cancer p...

journal_title：BMC palliative care

authors： Casadio M,Biasco G,Abernethy A,Bonazzi V,Pannuti R,Pannuti F

更新日期：2010-06-08 00:00:00